Kendalyn (Kiki), age ten, has “the most tender heart,” according to her mom, and it’s due in part to all she’s been through. Born with complete intestinal failure, or total parenteral nutrition (TPN), Kiki has never been able to eat food in the traditional sense and faces chronic pancreatitis and lung disease. She typically spends two to three months out of the year at Intermountain Primary Children’s Hospital.
While at the hospital, Kiki stays occupied with some of her Child Life therapists providing constant crafts and toys. Since she’s often in a lot of pain but only able to combat it with over-the-counter pain medication, she also works with a caregiver who provides acupuncture and massage therapy. Sometimes she also uses a wheelchair when walking becomes too painful.
Despite her body not working the way it’s supposed to, Kiki has done ballet for as long as she can remember. She loves playing with friends and participates in her school’s robotics club. She’s also passionate about educating her classmates about what it means to have medical complexities, enjoying reading the book Super Tubie to her class.
Kiki has a close bond with her service dog, Reggie, who acts as an additional alert system for blood sugar and TPN leaks. Reggie goes everywhere with Kiki, often dressed in a pink vest, with painted nails and a bow in his hair. With Reggie at her side, Kiki continues to be a bubbly, happy-go-lucky kid pursuing what she loves.
Gifts like yours to the KSL Give-A-Thon directly benefit patients like Kiki. We are so grateful for your support.